The Future of Patient Generated Data for UK Health Research

NHS Personal Health Stores allow secure and shareable health data exchange so that patients can stay informed and in control of their information. People experience many health and care events over the course of their life, each of which generate data that is stored across siloed IT systems in the…

Personal online health stores allow NHS patients, and the people supporting them, to stay informed – with a single source of truth that’s updated in real-time. Using XFORM and technologies like Solid Pods and verifiable credentials that enable decentralized identity, gives patients control over their own health data. This means…

In episode 6 of The Decentralized Web podcast, Jonathan Bingham is joined by Monica Jones from Health Data Research UK (HDR UK), where she is Chief Data Officer at DATA-CAN, Associate Director of the North Better Care Partnership and contributing author to the UK Department of Health and Social Care’s…

In episode 6 of The Decentralized Web podcast, Jonathan Bingham is joined by Paul Henninger, Head of Lighthouse and Partner at KPMG. Lighthouse is KPMG’s data analytics and engineering team that develops data and artificial intelligence solutions for businesses. During the conversation Paul explains the concept of ‘the digital self’ in…

Through XFORM and Solid pods, the decentralized web makes healthcare better for patients, healthcare professionals and health services. Giving patients access and control over their information, and creating a consent-based data bridge, means that healthcare professionals can quickly and easily find an accurate record of each person’s health history. XFORM…

In episode 5 of The Decentralized Web Podcast, host Justin Bingham is joined by Eric Prud’hommeaux, Data Sanitation Engineer at W3C and Data Architect at Janeiro Digital. W3C is the main international standards organisation for the world wide web. During the podcast, Justin and Eric discuss the evolution of FHIR and…

In the fourth episode of the Decentralized Web Podcast, hosts Jonathan and Justin Bingham are joined by Cameron Boozarjomehri, Lead Software Systems Engineer at MITRE, a company which aims to solve problems for a safer world, working in the public interest to discover new possibilities, create unexpected opportunities, and lead by…

This week’s outage occurred due to a “faulty configuration change” at Facebook HQ which, in turn, affected Facebook and everything Facebook owns, including Instagram and Whatsapp as well as and anywhere you ‘login via facebook’. The outage caused global and wide scale disruption for individuals and businesses who rely on…

Every year INTEROpen runs a series of hackathon events supported by the UK’s NHS, bringing together innovators and experts from across healthcare and technology to accelerate the development of open standards for interoperability in the health and social care sector. In March 2021, we joined the INTEROPen hackathon to help…

In the third episode of The Decentralized Web podcast, hosts Jonathan and Justin Bingham are joined by Dr. Zulfikar Ramzan, Chief Digital Officer of RSA, the Security Division of EMC – a Bedford, Massachusetts based security solutions company enabling customers to detect, investigate and respond to advanced threats, confirming and…